Thursday, February 27
I'm back.  Yesterday was such a horrid day.  I don't think I have ever experienced such pain.  Every joint in my body had me screaming in pain.  My hands were so bad I could barely type.  I called my doc and I spent two hours in his office yesterday afternoon, with him trying to figure out what was best for me.  He's pretty sure - from my flare - that I am indeed on placebo on this clinical trial I'm on (the other slim possibility is that I'm not responding).  So he's trying to get me on what's called open label so I can still be on the trial, but know for certain I'm getting the real med.  He's also put me on prednisone, a very low dose since I've had a reaction to it and cortizone before.  He wants to make sure it is indeed the prednisone that I was having the reaction to and not just the cortizone, since having reactions to prednisone is highly rare.  He's also put me on the anti-inflammatory Bextra 4 pills a day (base RX is one!).  If I don't see any improvment in the next couple of days then I'm going off the trial completely and going with the Remecade (which is $4000 per treatment!).  Its so expensive to get healthy!  On the upside, if I do go on the Remecade, it should help my ulcerative colitis as well!  But, we'll see.  One thing I do know, is that I cannot go on like this.  
Michelle sent me a really nice card  - thanks Michelle!  And thank you to everyone who left comments.  I can't tell you how much each one means.  Thanks to Colin who put up a t-shirt for me today, that totally cracked me up!  
I think I'll stay home today, and work from home as I can.  I've got some slides that I need to reformat so it should keep me busy and I can work on them the next couple of days if I need to.  As long as they're done by Monday.  
Have a great Thursday everyone!  :-)